Friday, January 18, 2008

The Endo Journey

Well, I have a million happy things to write about on here, but the pictures that go with these things are all on my computer at home. And I am still at work. Soooo... expect a funner post later tonight! :)

For now, I'm gonna blog on here a sec about endometriosis.

MedlinePlus says:

Endometriosis is a problem affecting a woman's uterus - the place where a baby grows when she's pregnant. Endometriosis is when the kind of tissue that normally lines the uterus grows somewhere else. It can grow on the ovaries, behind the uterus or on the bowels or bladder. Rarely, it grows in other parts of the body. This "misplaced" tissue can cause pain, infertility and very heavy periods. The pain is usually in the abdomen, lower back or pelvic areas.

For me:

Young teen - I had crazy-heavy periods, with a ton of pain. As I got older the bleeding wasn't as heavy, and I learned that taking Aleve at certain times helped with the pain.

Age 17 - I went to the doctor with severe pain. The doctor said I had IBS, told me to take a warm bath, and sent me home.

Age 18 - Symtoms were still there at random intervals... one day, when they were especially bad, I went to the ER. The pap smear hurt so bad that the nurse cried WITH me. The doctor? He just said I might have a cervical infection that just wasn't showing up on their tests. He told me to make an appointment with my family doctor.

Age 18 - Sent to first GYN. His verdict? Nothing was wrong. (Loser piece of crap doctor!)

Age 20 - Went to ER in Chicago. sent to GYN #2

Age 20 - Went to GYN in Chicago. Said it was "all in my head."

I gave up... maybe it was just all in my head. Maybe I was just dysfunctional, and there really wasn't anything wrong with my body. I gave up on finding out on what was wrong, or getting a cure... and just learned to live with the pain. Maybe it was just IBS...

And then, I had sex. And it HURT LIKE HADES!!! Not like the first-time-with-a-man pain... Like "OMG you just rubbed salt in my wound repeatedly" level of pain. And I have a high pain tolerance!

So here I am today... newly married, and unable to enjoy sex with my husband. The new doctor diagnosed me with endometriosis, and put me on birth control pills....

Since starting the birth control pills, I have noticed that I have pretty much every possible side effect listed on the box. Nausea, mood swings, tiredness, as well as tenderness in... well... every part of my body that gives even remotely pleasureable sensations. And the doctor says there is no other birth control that will work better, except Depo... and it's effects last for THREE MONTHS!!!

I have two books about Endo out from the library... I'm reading up on all the ways to treat Endo through nutrition, medication, holistic stuff... even how to deal with the sex issue. (Which, BTW, has me feeling like absolute crap. What kind of wife am I? Every time my hubby touches me, I wince. Since I got on the pill, EVERYTHING hurts! THIS IS NOT WHAT MARRIED LIFE WAS SUPPOSED TO BE!!!!!)

I'm fighting depression, from the hormones, the adjustment to marriage, and life in general... and today, life is just hard. But I have books to help me... I'm sure there are others out there blogging who have Endo too... they have support groups... I just need to reach out, and see what I find.

There's no where else to go from here, but UP!!!! :)

6 comments:

Our Home Schooler and Jen said...

honey Im praying for both of you
especially you
well done for reaching out I pray you will be able to get more help
hoping you have talked to James about this Im sure hell understand and want to help you in working out how to deal with this
my thoughts and prayers are with you
HUGS
Jen

TammyVitale said...

lesson #1: everything is exactly as it is supposed to be. This will cause you and honey to find out all the ways you can have sex without actually having it - it'll hold you in good stead after birth and after a hysterectomy, should you ever have one. =] Consider it merely a part of the grand adventure you have just embarked on. xo hang in there.

Tammy Brierly said...

I was going to ask about this after reading about it but I waited for you. This must be extremely hard on you! HUG

I hope you find relief soon sweetie! XXOO

Anonymous said...

I will be praying for both of you. Things are seldom what they are supposed to "be like". But like TammyV said, it gives you both the opportunity to explore other ways to bring each other pleasure. It doesn't make you any less of a wife, woman, etc. and if I know James even slightly, he is still going to love you and want to be with you regardless. Debby went through some major stuff with endo. You'll have to ask her about it. Things will get better. In the mean time, hang in there!!!

She Became a Butterfly said...

be careful of depo. i took it and got my period for 3 months straight!! i was horribly ill! i was the small percentage that has a continuous period instead of the large percentage that has no period at all!!

Holistic Mama said...

I have not been diagnosed with endo yet, but my doctor thinks I have it(long story). I am new here and just thought I would say hello. Keep a smile on your face, things will get better!